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Finn todayAt first glance, Finneas Okochi is a typical four-and-a-half-year-old boy.

At birth Finn was diagnosed with Wiskott-Aldrich syndrome (WAS), a fatal hereditary immune system disorder that claimed the life of Finn’s uncle Mark in 1975 at the age of nine. Thanks to advances in bone marrow transplant techniques and the creation of the NMDP, a cure was now available for Finn.

The problem was not only that Finn needed a bone marrow match but that he also had to be old enough to survive the radiation and chemotherapy needed to prepare his body for the new bone marrow.


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Childrens Tumor Foundation New England
Funds research, patient support and public awareness of the neurofibromatosis NF1, NF2 and schwannomatosis genetic disorders that cause random tumor growth throughout the body

 


 

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